Having cancer is one of those things that you improvise, sort of like playing a made up game where you’re making up the rules as you go along. Living with cancer is not one of those games that comes with a 5-page booklet full of step-by-step instructions. While there’s an industry worth billions of nothing but self-help books, it’s unlikely that any one of those books is going to fit your individual situation. No matter how much advice you get or how many self-help books you read, the bottom line is that living with cancer is a journey that you ultimately end up trekking on your own.

Yes, it definitely helps to have family and friends who can offer advice and encouragement, but no matter how much they try or care, there is still a lack of specific instructions that we (the patients) feel we need when we’re seemingly thrust into the uneven and arduous terrain of such a drastic life change. There’s so much stress, upheaval and fear that accompanies cancer, and it’s not something that anyone is ever prepared for.

This road is filled with unexpected twists and unwanted turns and setbacks, but one baby step at a time, you learn to find your way. You begin to design a new life, remembering where life has brought you, honoring what you’ve experienced and learned along the way.